Supporter emails – October 2021

Thanks to Norrms for starting this petition: MAKE DEMENTIA TRAINING MANDATORY FOR ALL CARERS AND NURSES. Please sign.

Thanks to Bristol Age UK for their latest newsletter. Good information about some local groups.

Thanks to BRACE for their latest magazine and Alzheimer’s Society for the latest edition of Dementia Voice.

We’ve hesitated to share this – it is the heart-breaking story of Anna who first showed symptoms of FTD (frontotemporal dementia) at just 36 years old and sadly died 5 years later. Her mother Christine explains how they first noticed Anna was behaving differently at Christmas and that she was initially diagnosed with depression before eventually getting a dementia diagnosis nearly a year later. Christine describes how they lost Anna the day the symptoms first showed up.
Dr Sarah Jarvis explains how it can be challenging to get a diagnosis because a lot of the symptoms overlap with other conditions. She stated that there are 65,000 people with Young Onset Dementia under 65 years old in the UK.
Listen here from 1.08-1.33

There are nearly 5,000 people living with Dementia in Bristol, of which 1000 are Young People with Dementia (Young being defined as working age). BDAA co-hosted a webinar “Supporting Young People with Dementia” last year. Since then, we’ve formed a Young Onset Dementia working group and our volunteers are running monthly Carers support groups and focus groups for people living with YOD and their carers. We have also set up The Denim Generation Facebook group for people living with YOD, their carers and professionals or people connected with dementia to share resources. If you would like to attend our next working group which is on 28th October at 6pm please contact us on office@bdaa.org.uk for the zoom link.

Bristol Health Partners would like to hear from you if you have had a recent diagnosis, you are living long term with dementia, or are or have cared for someone with dementia. This is a valuable chance for people with dementia to feed into the dementia model of care as part of the wider Ageing Well strategy. 
Further details here.

Thanks to BOPF for sharing this:
BRISTOL HABOURSIDE FESTIVAL 50th ANIVERSARY 2022.  WE WANT YOUR VEWS!
Please find below a link to a really interesting survey designed by Kate Webb, working with Bristol City Council.  She is keen to find out how next year’s 50th anniversary of the Bristol Harbour Festival can be more welcoming to older people.  So if you can spare a few minutes please fill it in and get your views included.
We need responses by October 15th. https://www.surveymonkey.co.uk/r/FFZHRGH

Carers Support Centre is offering Media Training for Carers on Thursday 4th November, 10.30am to 12.30pm – via Zoom. It will be a 2-hour interactive workshop focussed on radio interviews.
We will explore the importance of sharing carers’ stories in the media and help carers recognise that they have a story to tell. We are hoping that a representative from BBC Radio Bristol will join us to support the training too. We will cover:

  • Why do we do media interviews?
  • What makes a good interview?
  • How to prepare for a media interview.

The aim is to give carers the tools and confidence to say yes to radio interviews in the future.
Contact Freya on: FreyaJ@carerssupportcentre.org.uk  0117 958 9903

This sounds good – matinee performance on 15th November
http://redgravetheatre.com/…/happy-days-are-here…/1002/

Great to read that Bristol Beacon has an updated website which includes information about their community work. We know they are supporting people with dementia. 

“Coping with the Pandemic” A review of the past year at our BDAA AGM (with accounts & policies) will be on Thursday 21st October at 6pm. We’re hosting it online for ease this year.  Please email us on office@bdaa.org.uk for the zoom link. We promise it won’t be long or boring! ‘-)

Our next Dementia Friendly Church: Meaningful Worship and Dementia webinar is on Tuesday 16th November 10.30-12.00. 

Join us for a  Neal’s Yard Christmas facial and gifts online event on November 19th 7-8pm. We always have so much fun on these and the samples are lovely and smell amazing. We run these as a fundraiser for BDAA so it’s £10 to join plus a small Eventbrite joining fee.